Rare and serious diseases
We will help children living with rare and serious medical conditions, including Spinal Muscular Atrophy (SMA) and haemophilia, access prescribed treatments and ongoing medical support.
Our focus
- Spinal muscular atrophy (SMA)
- Helping children living with SMA access prescribed treatments and ongoing medical support.
- Haemophilia (hemophilia)
- Helping children living with haemophilia access prescribed treatments and ongoing medical support.
How support will be given
We will work with verified healthcare providers and implementing organisations, assess medical needs and prioritise vulnerable beneficiaries.
We will monitor funded programmes, ensure responsible use of donations and share transparent financial and impact reports with supporters.
Become a supporter
Following completion of its registration and operational arrangements, SPEAK Trust UK will introduce its fundraising programmes and opportunities for public support.
Partner with us
We will bring together individuals, communities, businesses and charitable partners to help make essential healthcare accessible to those who need it most.