Rare and serious diseases
We will help children living with rare and serious medical conditions, including Spinal Muscular Atrophy (SMA) and haemophilia, access prescribed treatments and ongoing medical support.
Following completion of its registration and operational arrangements, SPEAK Trust UK will introduce its fundraising programmes and opportunities for public support.
We will help children living with rare and serious medical conditions, including Spinal Muscular Atrophy (SMA) and haemophilia, access prescribed treatments and ongoing medical support.
We will support eligible patients with essential medicines, diagnostic services, medical equipment and other necessary healthcare assistance.
We will support programmes that promote disease prevention, health awareness and improved access to healthcare for underserved communities.
We will uphold transparency, accountability and compassion in every aspect of our work.
Our trustees will independently oversee fundraising, grant-making and the use of charitable funds.